THE SHIP THAT SHALL NEVER SINK
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Anonymous asked: Are you still talking about your special snowflake disease, and how you can't go for a walk because of "muh genetics"? Stop making these sad excuses. You're a 30 something year old boy living with his parents. Go enter the real world and lose some weight, and stop campaigning for an unrecognized and unreal "illness".
Actually, there is a special snowflake disease. Myasthenia gravis is called “snowflake disease” because it affects those afflicted so differently.
But I don’t have that.
If you are speaking of Chronic Fatigue Syndrome, I will admit there is not a strong diagnostic test that can prove I have it. But, much like gravity, it can be proven to exist through observation.
You drop a pencil and it falls to the floor.
Doctors test my blood and find a retrovirus that is very common in people with CFS.
You go in one of those spinny things at the fair, you stick to the wall.
Doctors evaluate my symptoms, rule out all other possibilities, and diagnose me.
I am 32.
I do live with my parents. They are pretty neat.
I went to the real world last night! I even took pictures!
I am glad I did that, but right now I feel quite miserable. It’s very distressing, I’m in a lot of pain, I cried a bunch because the hangover fatigue was so intense, and I haven’t been able to move most of the day. Which is maybe why I don’t go to the real world all that often. FUN!
I lost about 20 pounds, but for some reason I can’t seem to lose anymore. My weight is an issue I have tried to address for a very long time. It’s hard for healthy folks to lose weight. Would logic not dictate it would be a great deal harder for people with debilitating fake illnesses?
Also, ~50% of my problem is narcolepsy. Which does have a definitive diagnostic test. The treatment is usually stimulants, but in my case the side effects were much worse than the benefits. So even if you think the CFS is a magical concoction of my brain… I have a whole ‘nother crappy disease that makes it totally legit for me to make excuses.
Though… it would be nice if you didn’t throw CFS under the bus like that. It affects millions of people and it sucks plenty on its own. Not just fat folks like me. Skinny people. Old people. Young people. It really doesn’t care. Yet there are a legion of doubtful blatherskites like you who seem intent on adding another layer of suck to this already sucky illness.
Every recognized medical institution says you are wrong.
But hey, gravity is just a theory, right?
The Frogman takes these incredibly cruel and anonymous comments in stride, and addresses them with a grace and dignity that they don’t deserve.
I will add that, as I’ve said before in a video that is currently viral: when someone is cruel like this anonymous person is, it has nothing to do with the person they’re being cruel to, and everything to do with how bad they feel about themselves.
So, anonymous person who decided to be cruel to The Frogman: I hope that you’ll see this, and I hope that you’ll realize that the person you were so cruel to is a human being just like we are, and that he is doing everything he can to find joy in his life. He’s making things that make a lot of people happy (including me), and he’s doing the best that he can.
I don’t know why you decided to spend a little bit of your day being cruel to him, and I don’t know why you thought that being cruel was a really great way to spend that time, but I sincerely hope that whatever is making you so unhappy in your own life, and whatever is making you feel like attacking and trying to hurt another human being is going to make you feel better about yourself actually *does get better*.
I know that you can do something awesome, and I know that you can put something wonderful into the world. I’m so sorry that the people in you life can’t or won’t see that, but trying to hurt other people who are vulnerable won’t make the people whose approval you need suddenly treat you better.
Please, anonymous, try to be the person you want other people to be, and instead of attacking and trying to hurt someone who hasn’t done anything to you, maybe try to be kind to people online and elsewhere.
We attract to ourselves what we put into the world, and though it seems like someone is hurting you and making you feel bad, when you are kind and awesome, you’ll draw people toward you who will make you feel good about yourself, I promise.
Best moment in the whole series.
Olivia, my eldest daughter, caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe-cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn’t do anything.
“Are you feeling all right?” I asked her.
“I feel all sleepy, ” she said.
In an hour, she was unconscious. In twelve hours she was dead.
The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her.
That was twenty-four years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.
On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunised against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.
It is not yet generally accepted that measles can be a dangerous illness.
Believe me, it is. In my opinion parents who now refuse to have their children immunised are putting the lives of those children at risk.
In America, where measles immunisation is compulsory, measles like smallpox, has been virtually wiped out.
Here in Britain, because so many parents refuse, either out of obstinacy or ignorance or fear, to allow their children to be immunised, we still have a hundred thousand cases of measles every year.
Out of those, more than 10,000 will suffer side effects of one kind or another.
At least 10,000 will develop ear or chest infections.
About 20 will die.
LET THAT SINK IN.
Every year around 20 children will die in Britain from measles.
So what about the risks that your children will run from being immunised?
They are almost non-existent. Listen to this. In a district of around 300,000 people, there will be only one child every 250 years who will develop serious side effects from measles immunisation! That is about a million to one chance. I should think there would be more chance of your child choking to death on a chocolate bar than of becoming seriously ill from a measles immunisation.
So what on earth are you worrying about?
It really is almost a crime to allow your child to go unimmunised."
Roald Dahl, 1986
NINETEEN EIGHTY SIX.
roald dahl was calling out the anti-vaccination movement as self indulgent bullshit //thirty god damn years ago//.
And this is only in recent history. I can’t imagine the numbers if we had data all the way back to 1986.
And thanks to anti-vaxxers, measles is back in the United States.(via thebicker)